Three-month-old baby in Singapore, Lucas, diagnosed with Spinal Muscular Atrophy (SMA) Type 1, urgently requires treatment with the “world’s most expensive drug,” Zolgensma, priced at S$2.4 million.
Without the gene therapy, Lucas may not live past his second birthday. His parents, Andy Wang and Lavin Chong, noticed Lucas’s lack of movement and decreased activity compared to other babies. After receiving the devastating diagnosis, Lucas has been put on medical support and prescribed a temporary medication costing S$9,000.
The couple also run an Instagram and Facebook page for updates on Lucas’ progress. Top photo is from the Facebook page.
Baby Lucas
However, Zolgensma is not subsidized by the government, and SMA treatment is not covered by the rare Disease Fund in Singapore, leaving the family to independently finance the treatment. The parents are looking for donations.
