genetic disorder
5-month-old baby with rare genetic disorder reaches S$2.4 million fundraising goal
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5-month-old baby with rare genetic disorder reaches S$2.4 million fundraising goal

1 min read

A fundraising campaign for five-month-old Singaporean baby Ginny, diagnosed with Spinal Muscular Atrophy (SMA) Type 1, has successfully reached its S$2.4 million target. As of March 21, a total of 35,544 donors contributed to the cause. Ginny’s parents, Jenny and Quan, announced that they are now coordinating with the hospital to begin treatment.

genetic disorder

The funds will cover Zolgensma, a gene-replacement therapy considered the world’s most expensive drug. Without treatment, SMA Type 1 patients rarely survive beyond early childhood. The couple expressed heartfelt gratitude to supporters, saying the donations have given Ginny the chance for the best possible future,

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